Thread Reader
Catherine w/ MCAS

Catherine w/ MCAS

Mar 9, 2023
5 tweets

Putting this important 🧵 in right order (to unroll)

What the study found: ✅ Out of 59 patients who qualified for #FND diagnosis by DSMV criteria, 88% had autonomic symptoms!!! ✅ 27% were positive for ganglionic acetylcholine receptor antibody (gAchR Ab) via LIPS assay. ✅ 50% had #POTS. ✅ 50% had orthostatic hypotension. 2/🧵
Why is this important? ✅ Our patients are often misdiagnosed with #FND, and this study proves that. ✅ When #FND is diagnosed, treatment is psychotherapy & physical therapy, which is not a treatment for #Dysautonomia. ✅ We MUST identify and treat #Dysautonomia symptoms. 3/🧵
✅ Perhaps FND society and DSMV should rethink their diagnostic criteria for #FND if 88% of their patients have #Dysautonomia. ✅ #Dysautonomia is not #FND. ✅ #Autoimmunity and what to do about it in patients with #Dysautonomia should be a priority #research topic. End 4/4
What I didn't mention, but probably should have is that 9 patients who qualified for FND diagnosis were excluded because of concomitant neuroimmune disorders, like Sjogren's, myasthenia and CIDP... This too is very important because it's 13% of their FND cohort!
Catherine w/ MCAS
MCAS = Mast Cell Activation Syndrome MCAS is the equivalent of having an immune system with PTSD
Follow on Twitter
Missing some tweets in this thread? Or failed to load images or videos? You can try to .